I put on dark glasses that blocked my vision. I put in ear
buds that chanted gibberish and wailing sirens. I put on too-big gloves, one
inside out. I put plastic inserts in my shoes that poked me constantly.
Then I went into a darkened room with a strobe light
flashing and attempted to complete several tasks, spoken to me quietly in quick
order.
Uh, what?
I fumbled around, remembering the tasks, but not able to
complete them all because I couldn’t find what I was looking for. Where were
the towels?
I have the advantage of a good memory and the ability to
block out noise and pain – at least temporarily.
But for people with dementia, this distorted reality might
be too real.
Stoney River Memory Care in Marshfield provided the session
for members of the Wood County Coalition Against Abuse Interdisciplinary Team
recently. The purpose of the I-Team is to increase awareness surrounding the
topic of abuse and neglect of elders and adults at risk in Wood County, to
coordinate efforts of various agencies that respond to abuse and neglect and to
facilitate the development of better resources and preventative efforts. We
meet quarterly to learn and share. We have different guest speakers and topics
each time.
The virtual dementia tour is meant to simulate what a person
with dementia might be experiencing. The shoe inserts mimic foot pain or
chronic pain, and they make you more unsteady. The glasses distort and darken
vision as might be the case with eye problems in elderly people. They also
alter your “normal” reality. The gloves make you fumble more – you’re less sure
of your grip and have trouble with fine motor skills. The ear buds that provide
constant noise distract from the task at hand. They make it hard to hear
instructions, just as hearing loss can make it hard to hear people’s voices.
We were timed as we did our tasks, although our results
weren’t revealed. I think the timing was meant to encourage us to keep going
and wrap up our tour – not that anyone would want to stay longer than
necessary.
We knew we were only in that situation for a short time. We
were doing it willingly.
People with dementia don’t have that luxury.
The women who offered the tour said they encourage family
members to take the tour to get an idea of what it’s like for their loved ones
with dementia. They said people sometimes break down, realizing how difficult
it would be to live like that.
The tour should help caregivers – both family and
professional – understand the importance of speaking slowly and clearly, making
eye contact, only giving one task or suggestion at a time, showing what you
want accomplished and taking into account pain and confusion.
The virtual dementia tour gave me a better understanding for what it
might be like to live with dementia and a greater appreciation for caregivers.
If you get the chance, I strongly encourage you to take a tour.
What a powerful experience... to empathize experientially teaches us so much. Your story helps me recognize the key to working with those effected by dementia is patience.
ReplyDeleteYou are absolutely correct! Thank you for sharing your thoughts.
DeleteThanks for sharing!
ReplyDelete